Archive | April, 2013

Prom Night

30 Apr

This story has been going around Facebook and I wanted to share it… (click to enlarge)

Prom

This picture has gone viral with thousands of “likes” and hundreds of thousands of “shares”. I think what people love about it is that it serves as a reminder that there are kind, loving people out there. There are people who want to bridge the social gaps between typical kids and their special needs peers. There are people who see beyond diagnoses and disabilities. There are people who love, unconditionally.

Good for that school for having a club to bring peers together. It’s clearly making an impact.

I only wish this dad would post a follow up letting us know how Jon felt about going to Prom 🙂

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Happy Birthday Dyl!

14 Apr

Dylan’s birthday party was this weekend. He gets really excited about his birthday every year. He loves parties and piñatas and cakes and candles. This year he chose to have a bowling party, and he got to celebrate with friends and family. But the best part (as it is every year), was singing to him during cake time.

You see, what my brother loves most about his birthday is the Happy Birthday Song. I mean, he LOVES it. He squeals with delight, smiles from ear to ear, and the joy he gets from people singing it to him is unparalleled and extremely contagious. His excitement is ridiculously adorable, and it’s the highlight of all his parties. Here are some pictures from PhotoStro.com, which captured his priceless expressions. I dare you not to smile…

DylBdayPix

10 years ago

9 Apr

JPG2719

 On this very day, 10 years ago, my littlest brother Dylan was born. I remember spending the day at the hospital with my siblings waiting for him to come. I was so excited when I finally got to hold him. I think I even skipped school the next day to be able to hang out at the hospital again. I was a Junior in high school at the time. And, I remember bringing his chocolate bar birth announcements to school with me and sharing with my friends.  I was so excited to have another baby brother!

My family and I had no idea the impact his little life would have on so many. But here we are, 10 years later, doing our part to share our experiences with those finding themselves on similar journeys. I know he will continue to inspire others, make them laugh, and maybe even change people’s perceptions. The effect he’s had on the world, unknowingly, in just one decade…incredible. I’m excited to see what the next 10 years bring us. But then again… can he just stay little, please?

Happy Birthday Little D!

Autism Awareness Month

4 Apr

I wrote this 2 years ago, in honor of World Autism Awareness Day, and ended up not sharing it…Until now.

“April 2, 2011- I thought long and hard about what to write for today. I came up with this… an honest look at what autism means to me.

Autism means heartache. It means fear. Fear of the unknown, fear of vaccines, fear of the future, fear of stagnation, fear of stigmatization, fear of failure, fear for safety, fear for when I’m gone. It means a family changed forever. It means loss. It means sadness, and anger, and hopelessness. It means worry, and panic and anxiety. Autism means pain beyond words. It means planning, and hoping and wondering and wishing. It means praying in tears for a cure, or even just for progress. It means a broken relationship. It means behaviors, and stims, and prompting, and teaching. It means uncertainty. It means waiting. It means denial, and repression. It means powerlessness, and inability. It means guilt. It means inadequacy, and unbearable hurt that I can’t take autism away. It means tough love, and pushing for more, and not giving up. It means the life I wish for my brother may never happen for him. It means the relationship I wish to have with my brother may never happen for me. Autism means making the best out of what you have. It means looking for the silver lining in everything. It means quirkiness. It means screaming and crying and tantrums and aggression. It means repetition and routine. It means triumph in every small victory. It means pride in every accomplishment, because they were so much harder to achieve. It means being aware. It means devastation. It means despair. It means frustration and hatred and boiling blood. Autism means sorrow and longing. It means different. It means embarrassment. It means never being satiated. It means advocacy and fighting and educating. It means a life-long battle. It means silliness. It means being perplexed and stuck. It means dichotomy. It means ambivalence. It means being misunderstood. Autism means caring, and compassion, and sympathy and empathy. It means a sweet smile. It means hugs and kisses worth more than a million bucks. It means redefining. Redefining success, redefining hope, redefining progress, redefining values, and strategies, and priorities. Autism means struggle. Struggle for the afflicted, struggle for their families. Autism means strength. Autism means weakness. Autism means faith. It means a new direction. It means helping. Autism means broken hearts. Autism means passion. It means finding joy and elation in every feat. It means never giving up. Autism means unconditional love.”

It was interesting for me to go back and read where I was at in 2011. I remembered writing about the gut-wrenching pain of autism, and just how many emotions a person can have about it. I didn’t remember my piece being quite so… What’s the right word?….depressing?? I can see that I’m in a different place, emotionally, now than I was back then. Not that the deep pain of autism has disappeared! No, I don’t suspect that it ever will. But I have seen so much progress in my brother that it’s allowed even more hope and excitement and pride to come in. (Those have been there all along, by the way.) All of the hardship and turmoil remains. I don’t think I’ll ever NOT be sad that I can’t have the type of relationship with my brother that I would like to have. But, I am just so overwhelmed with happiness and gratefulness for the relationship I do have with him. And I don’t think I’ll ever NOT be heartbroken that he may not have the life I wish he could have. But I’m determined (like the rest of my family) to make sure he has the best life he can.

He makes me smile unendingly. He makes me laugh, and beam, and he motivates me to do what I do. Autism is a beast. But it will never take away how remarkable my little brother is. And, let me just say, he’s pretty darn remarkable!

AngDyl

So tall…

1 Apr

My brother turns 10 soon.

 

I visited him yesterday for the first time since Christmas. Even though my mom and his dad live within minutes of me, I find that I get so busy with work and church and friends and my husband and everything else going on. Life gets in the way, and I’m not able to visit him as often as I’d like to. But I got to see him yesterday to drop off an Easter basket, and when I walked in, I was shocked….

 

He was so tall!!!

 

Somewhere between December 25th and March 31st, my little baby brother grew what seems like a mile. Okay, so it was probably 3 inches or so… but oh my gosh! He was huge!!

 

It made me sad. I know that’s typically a parental response… sadness that their little baby is growing up. But I felt it! My little brother, my Little D, was not little! And, I realized I can no longer carry him (not easily, anyway). I know I picked him up to get my goodbye hug on Christmas. I had no idea that would be the last time I’d be able to lift him.

 

Where did the time go? How did he get so big?

 

It was a loud reminder of the fact that he’s getting older, and he’s maturing. And, while it’s sad on the one hand, it’s also extremely exciting on the other hand. He has come such a long way. He amazes me everytime I see him. Literally. Everytime.

 

The way he gains people’s attention by calling their names…

The way he asks questions…

The way he asks for help…

The way he writes and spells….

Even the way he cooperats with calming techniques when he’s frustrated….

 

He’s so awesome. And even though he’s up to my chest now… He’ll forver be my Little D.

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